Your Genome Is a Specimen. Let’s Treat It Like One

Anish Kumar in Undark Magazine:

The announcement that 23andMe is filing for bankruptcy came as little surprise to many who had been following the company’s tumultuous year. CEO Ann Wojcicki was unable to rescue the genetic testing company from its unsustainable business model, leaving some 15 million consumers in limbo about the fate of their genetic data. Within a day, articles and online forums began advising customers to request the deletion of their data, warning of the possibilities of misuse that may ensue. Though 23andMe has always branded itself as a company dedicated to data protection, its own privacy statement makes it clear that customer data can be sold in the event of bankruptcy, merger, or acquisition, meaning a new entity may inherit the right to use (or profit from) 23andMe’s massive trove of genetic data.

More here.

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